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Rare Cancer Agenda 2030

Ten Recommendations from the EU Joint Action on Rare Cancers

Kindly hosted by Fulvio Martusciello, MEP

The Joint Action on Rare Cancers (JARC) of the EU ends in September 2019, after three years of work with 34 Associated Partners and 18 Member States. JARC has primarily focused on the European Reference Networks (ERNs) devoted to rare cancers, namely trying to optimize the process of their development in the areas of quality of care, epidemiology, research and innovation, education and state-of-the-art definition on prevention, diagnosis and treatment of rare cancers. This meeting at the European Parliament is aimed to present the final JARC recommendations (Rare Cancer Agenda 2030) and to make an assessment of where we are with ERNs and where we are going to about rare cancers in the EU, looking forward towards the next decade.

14:30 – 14:40 MEP F. Martusciello (PPE, IT) - Welcome from the European Parliament

14:40 – 14:50 F. De Lorenzo, ECPC - Welcome from the rare cancer patient community

14:50 – 15:00 P. G. Casali, JARC - Rare Cancer Agenda 2030: ERNs

15:00 – 15:25 Roundtable - What we would need for ERNs on rare cancers to fly
M. Pellegrini (EuroBloodNet)
R. Ladenstein (ERN PaedCan)

15:25 – 15:40 E. Terol, DG SANTE - ERNs future prospects

15:40 – 15:50 P. G. Casali, JARC - Rare Cancer Agenda 2030: what next towards 2030?

15:50 – 16:10 Roundtable - What next with rare cancers in the EU?
Dei Tos (University of Padua)
Borras (Catalan Cancer Strategy; University of Barcelona)
K. Oliver (The International Brain Tumor Alliance)
S. Oberst (Organisation of European Cancer Institutes)

16:10 – 16:20 S. Schreck, DG SANTE - Rare cancers towards 2030

16:20 – 16:30 P. G. Casali, JARC - Conclusions


11 Sep 2019 @ 02:30 pm

11 Sep 2019 @ 04:30 pm

Duration: 2 hours


European Parliament - Room ASP A5E-2

Place du Luxembourg

1050 Elsene


Organised by

Rare Cancers Europe

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