To mark World Rare Diseases Day on Wednesday 29 February, the European Society for PKU (E.S.PKU) alongside MEPs Esther de Lange and Antonyia Parvanova have the pleasure to invite you to the Launch of E.S.PKU’s Benchmark Report – ‘Closing the Gaps in Care’, in the European Parliament.This event aims to bring together high-level representatives from the EU institutions and National Stakeholders, as well as leading clinicians and academics.ESPKU will present their Benchmark Report – ‘Closing the Gaps in Care’, which compares access to and quality of care in five European countries, namely the UK, Spain, Sweden, the Netherlands and Poland. The Benchmark Report provides interesting insights into the management of PKU from healthcare professionals, purchasers and policy-makers to patients and carers’ perspectives. We urge you to join with us to highlight that action needs to be taken at EU and national level, to address the issue of disparities in access to care as well screening practices of PKU across Europe.Please register your attendance by Friday 17 February.
When
29 Feb 2012 @ 12:00 pm
29 Feb 2012 @ 02:30 pm
Duration: 2 hours, 30 minutes
Where
Brussels, Belgium
Bisschopsstraat 14
Brussels
Belgium
Language
Englishen
Organised by
Weber Shandwick (deactivated)
Event published: 6 Feb 2012 Event last updated: 18 Jul 2016
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